Methods:
Our protocol includes 3 phases: elicitation of key research themes, refinement of research themes into research questions, and prioritization of research questions into a research agenda. Elicitation will occur across 100 stakeholders via electronic surveys. Refinement will occur within both separate (i.e. caregivers/stakeholders [N = 40] separate from researchers/clinicians [N=12]) and mixed stakeholder focus groups or interviews with participants randomized into each category. Prioritization will occur across 1000 stakeholders engaged to be randomized to a modified Delphi process or engagement in the Codigital crowd-sourced virtual platform.